Sorry we haven't updated sooner, but we've been catching up on our sleep. We brought Rylee home Monday evening. Ryann was so happy to have sissy home. When we put her into her own bed, she sighed and stretched out. Nurse Darlena was here four nights, allowing us to get some much needed rest, knowing how well she would be looked after. We'd gotten used to the alarms and beeps, the interruptions for vital checks or blood work. Here, that first night, the quiet seemed loud. Tuesday we kept Ryann out of school, content to be home...together. Aaron headed back to work Wednesday, but checked in a few times throughout his busy day. Nurse Becky came by Thursday to do a quick once over, make sure Rylee sounded good. Then Miss Judy, Rylee's PICU nurse, stopped by today to visit. It was fun to see her outside the hospital and we enjoyed getting to know her better. Judy has taken care of Rylee from the beginning, so she really is part of our family. Aaron and I are so thankful for Rylee's medical team. There is no way we could care for her the way we have, without their support, encouragement, and guidance.
Rylee's stomach is recovering, and while she's sleeping more than usual-it's a deep, restful, quiet sleep. Almost all of her congestion is gone and she is tolerating her feedings. She had her first "normal" bowel movement Tuesday-showing us the medicine is working, keeping her comfortable while her tummy heals. I've never been more grateful to change a dirty diaper! I even called Aaron to brag on her! Later Aaron teased me for calling it "glorious!"
She still needs prayer as she recovers, but overall she is doing well considering how sick she was. Again, we are thankful for everyone who lovingly treats her, and cannot brag enough on her PICU staff of specialists and nurses.
Once again God reminded us of our complete lack of control...and His total abundance of competence.
Please continue to pray for Rylee's total healing and comfort. Pray that Aaron and I will continue to have a "steadfast heart" as David voiced in Psalms.
Thank you for your encouragement and prayers.
9 comments:
Glad to hear RYLEE is feeling better.. will continue to pray for Rylee.
Aunt Beth
Praise God!! I am so glad that you are getting some much needed sleep knowing that Rylee is in competent and loving hands. You are all on my mind and heart and in my prayers! We love you!
The Davidsons
So happy to hear that our RyleeBug is on the mend. Your family has been such a blessing to our lives. Deb, thanks for being such an encouragement to me, for being that one friend that I can truely relate to because of our little girls' illness. We love you guys. Livie sends get well hugs to her bestest buddy.
Love~Angie
So thankful to see that she is doing much better. What wonderful news. We will continue to pray for Rylee and you all.
Glad to know that everyone is home, sleeping in your own beds! It is great that you have such great help to get you through the nights. The best thing for your girls is to have a rested mom & dad! Praying you you all!
Praise God from whom all blessings flow.
So thankful God has allowed you a little more time with this precious little one.
We will continue praying for complete healing both physically and emotionally.
Love and prayers,
Mrs. Pam
I am so glad Rylee is feeling better and home. We continue to pray for you and your family.
Melanie
We are thrilled to hear Rylee is doing better and we will continue to pray for her. If you need anything at all please let us know.
Raechel and MSI
So great to hear Riley is doing good!! Give her a kiss for me, and put her bubble yum lip balm for me!! have a great night with your family!!
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