"For you formed my inward parts; You covered me in my mother's womb. I will praise You, for I am fearfully and wonderfully made; Marvelous are Your works, and that my soul knows very well. My frame was not hidden from You, when I was made in secret, and skillfully wrought in the lowest parts of the earth. Your eyes saw my substance, being yet unformed. And in Your book they all were written, the days fashioned for me, when as yet there were none of them." - Psalm 139:13-16
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2.27.2008

Fiona is home!

For all those praying and wondering about Rylee's little buddy, Fiona...She came home today after her second jag in the hospital (and the crowd goes wild!).
Please continue to pray for the entire Fitzpatrick family (Illinois).


As you can tell, she is just as spoiled with love as our Rylee.




This is Charles-Alexandre. His mommy and I say that he and Kaymaen are in heaven..."shacked up" together. Girls love a guy with an accent! His parents, Sonia and Marc, currently live in Paris. Recently, they started a non-profit. The
Charles-Alexandre Foundation assists families in getting the care they need for their chronically ill child. What a wonderful way to honor his time here on earth and his memory. We had the opportunity to meet at this summer's NKH Conference.

Sonia and I could have gabbed all day long.




Sonia loving on Rylee.


Little Tinkerbell is Miss Ellie Kate from Oklahoma. Her mommy is Mrs. Oklahoma, explaining why Ellie Kate is so gorgeous! This sweet family have also been in and out of the hospital recently. Ellie Kate has a NG tube for feedings right now, which can be really trying for a more active NKH child. Please pray that she will soon be back to receiving all nutrition by mouth. Pray they get a GI appointment and get some positive news/answers very soon. Ryan and Mike are also expecting their third child-so the whole family is worn out. Hospital stays are always tough-especially when you have other little ones at home waiting for you.


We'll be sure to keep you up to date on how she is doing!


2007 NKH Conference. Rylee with Fiona (left) and Ellie Kate (right).

And of course this is the Carter Family. Olivia is eight days older than our Rylee. Angie and I started chatting by phone and emailing fast and furious when the girls were a few months old. We love that the girls are "best friends" and are currently plotting how we can all meet! Maine is just too far away.


I wanted to put a few of the kiddos photos on here. There are so many wonderful families that we've meet personally, or have touched hearts with via the computer. I hope that you will continue to check on these special families and add them to your prayers when you pray for us.




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1 comment:

Shari said...

All of those babies are beautiful! I could hold and rock them all day long! Thank you for sharing these little ones. I will keep them in my prayers as well as Rylee, too.

Blessings!

Shari

Thursday, February 28, 2008 4:00:00 PM

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"For Thou didst form my inward parts; Thou didst weave me in my mother's womb. I will give thanks to Thee, for I am fearfully and wonderfully made; wonderful are Thy works, and my soul knows it very well. My frame was not hidden from Thee, when I was made in secret, and skillfully wrought in the depths of the earth. Thine eyes have seen my unformed substance; and in Thy book they were all written, the days that were ordained for me, when as yet there was not one of them."

Psalm 139:13-16